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ADULT MEMORIES: WHAT HAVE NEW ZEALAND ADULTS LEARNED ABOUT             BLINDNESS FROM THE EDUCATION SYSTEM.

 

Paper presented to the ICEVI 10th World Conference

 Sao Paulo - Brazil

August 3-8, 1997

 
Nancy Higgins and  Keith Ballard

Education Department
University of Otago
P.O. Box 56
Dunedin, New Zealand

William: I remember thinking it was all very important or that I was very important...I was going to intermediate now and going to a school for sighted children. I remember thinking at the time that that was quite a significant thing. That I was going to a school just like everybody else.
William is one of seven blind New Zealanders whose voices were used to explore some of the ways in which blindness has been socially constructed in New Zealand society, particularly within the education system. William's educational experiences, along with those of the other six people interviewed for this study, were embedded within cultural, ideological, and historical contexts. Sullivan (1953) suggests that the individual may only be understood through their relationships within their social group. Along with Mead, he proposed that the self is a social construction. (Youniss, 1983). Social constructionists, according to Schwandt (1994), focus on the "collective generation of meaning as shaped by conventions of language and other social processes" (Scwandt, 1994, p.127). Social construction, itself, is part of a sociology of knowledge that is rooted in Marx's proposition that a person's "consciousness is determined by (their) social being" (Berger & Luckmann, 1966, p.17).
Berger and Luckman (1966) say that the sociology of knowledge is concerned with the sum of every aspect of knowledge. This includes not only theory, ideas, and ordering factors, but also ultimately what everyday people know as reality. They thus claim that reality is socially constructed, and in their work theorise about the process of social construction. This process hinges on language, which allows the individual to objectify and typify her or his subjective experience; to transcend the here and now; and to build up meanings and a social stock of knowledge which is distributed and passed from generation to generation. Language thus apprehends and produces the world and conversation is the tool used to maintain this world. Conversation, written or oral, helps to legitimate societal institutions which are dialectically formed to control individuals and which also, through the socialization process, provide individuals with roles and identities that maintain society. From such a perspective, Olssen (1991) points out that "what individuals like to think of as their attitudes, their values, their actions are in fact public rule systems or codes which define all possible modes of thought and action" (Olssen, 1991, p.204).
Disability has been seen and constructed primarily as a personal tragedy and a medical issue (Oliver 1990). Such constructs, according to Oliver, may acknowledge that there are social dimensions to disability, but do not acknowledge the social causes of disability as coming from the environment, but instead from the individual's handicap. Gwaltney (1970), however, in his study in a Mexican village depicted how blindness was viewed as a community problem and not an individual problem. In this culture and setting it was believed that blindness was a consequence of divine intervention and the villagers had developed an elaborate system of social mechanisms, such as child guides, to enable the full participation of people blind people in the community. Scott (1969) in his qualitative study, The Making of Blind Men, examined in depth the stereotypes and stigma which American society attributed to people with vision impairments. He concluded that "Blindness. . .is a social role that people who have serious difficulty seeing or who cannot see at all must learn to play" (Scott, 1969, p. 3). The stereotype beliefs that prevailed were that people with vision impairments were helpless, docile, dependent, melancholic, aesthetic (more sensitive to music and literature), and serious minded. These stereotypes lead to stigma in that people with severe vision impairments were seen as 'different' as well as physically, psychologically, morally and emotionally inferior to sighted persons.
THIS STUDY
Scott (1970) emphasized how professionals and organisations changed the identities and respectability of people with severe vision impairments in the service delivery process. Barton (1988) along with other researchers (Gerber,1990; Oliver, 1992) call for research to focus on understanding the world from the participant's viewpoint, to examine contradictions in specific social encounters, and to emphasize the 'social construction of reality and thus the ways in which people in their interactions reconstitute the social order' (Barton, 1988, p.90).
Bogdan and Taylor (1992) believe that people who interact with people with severe disabilities hold a range of definitions about these people. These perspectives include clinical views, dehumanizing views, and humanizing views. Bogdan and Taylor suggest that a sociology of exclusion, which has been extensively researched by Goffman, Scott, Edgerton, and themselves is only part of the story, and that a sociology of acceptance must also be included and explained in research because accepting alliances do exist and these 'question deterministic notions of labelling, stigma, and rejection' (Bogdan & Taylor, 1993, p.279). In their study, The Social Construction of Humanness, they looked at how non-disabled people formed humanizing definitions and constructions. They state that there are four dimensions to humanizing definitions involving the attribution of thinking or the ability to understand, reason, and remember, to the other person; the ability to see individuality in the other person by acknowledging their distinct qualities and personality, their 'normal feelings and motives', and their life history or individual identity; the ability to reciprocate in the relationship through a valued equal contribution; and the ability to define a social place for the other person. Bogdan & Taylor believe that a social place is not only playing a social role, but also being an integral part of a group or the social unit of the definer. In their study of accepting non-disabled people, disabled people were recognised as 'someone like me' (Bogdan & Taylor, 1992, p. 291). Disability was viewed as 'secondary to the person's humanness' (Bogdan & Taylor, 1992, p. 291).
Such acceptance can be thought of as the ideological aspirations of educational mainstreaming, or inclusion, where children with disabilities are valued as unique thinking individuals, who can participate in reciprocal relationships, who have a vital role in their school and community, and who are not defined only by their disability. In order to fully understand the meaning of blindness, it is important, then, to be aware of the actual experiences and relationships of blind people and study the meaning they, and others in their lives, give to blindness. 'Meaning-making' within the social constructionist approach is not an activity of the individual mind but is a collective activity.
Blind people in New Zealand have been informally integrated into the mainstream of education since its inception in 1877 (Pole, 1986). The Rev. Chitty was one of the first blind students to graduate from Auckland University at the turn of the century. Blind students at the Institute for the Blind in Auckland were mainstreamed in secondary schools near the Institute in the 1940s and 1950s (Cattran & Hanson, 1992). Sight saving classes were opened at Waltham School in Christchurch and Te Aro School in Wellington for children with partial sight in 1949 (Mitchell & Mitchell, 1985). These sight saving classes were followed by similar classes in Dunedin at Forbury School and in Auckland at the Institute's school. The children in the Christchurch class were the first children to be mainstreamed as a matter of policy into the regular school in 1962 (Mitchell & Mitchell, 1985). Also, in 1962, a blind child was integrated into her local Auckland Intermediate school. (Catran & Hansen, 1992). In 1964, the New Zealand Department of Education bestowed on the Foundation for the Blind (formally called the Institute for the Blind) 28 acres of vacant land for their special school, Homai College, at Manurewa . The children who attended Homai were sent to Manurewa High School where they were supported by a visual resource centre in 1965. and they also attended Manurewa Intermediate School in the 1970s.
Today, most blind children attend their local schools and there are visual resource centres in Auckland (with an attached unit in Nelson), Tauranga, Wellington, and Christchurch. There are sensory resource centres in New Plymouth, Palmerston North, Gisborne, and Napier. There are also itinerant teachers of children with visual impairments attached to an ordinary school in Dunedin and Invercargill.(Mitchell & Mitchell 1985; Havill & Mitchell 1972). However, despite this long history of mainstreaming, there is a surprising dearth of literature on the experiences of blind children in New Zealand mainstream schools. O'Brien (1989) is one notable study which delves into the issues of mainstreaming students with severe and moderate vision impairments. O'Brien found that schools and teachers have difficulties adapting the regular curriculum and the students attributed their academic problems to inappropriate instructional techniques in relaying information. She also found that teachers and students in this study felt that it was the responsibility of the individual student to attain popularity, or a positive social place, through a pleasant personality, the ability of the student not to dwell on their disability, self assertion, and a willingness "to have a go" (O'Brien, 1989, p.78).
This present study is an integral part of a larger study which is about the inclusive or exclusive encounters and relationships of seven blind adults, and three blind children in New Zealand mainstream schools; and how the meaning of blindness is constructed through these lived experiences. This present paper, however, will focus on the memories of the seven adult participants about their relationships, as children, with their mainstream principals and teachers. Using the approach of qualitative research (Bogdan and Biklen, 1982; Donmoyer, 1990; Eisner, 1991; Patton, 1987; Reinharz, 1992; Walcott, 1994; Yin, 1984), data was collected for this study through two to five open ended and semi-structured interviews which lasted between one and half hours to three hours each. These adults were braille users, of different ages which ranged from age 16 to age 56, and had various educational experiences in different mainstream settings. These settings included mainstream schools near the special school, schools with an attached visual resource unit, and schools with itinerant teacher support. Data was analyzed inductively and abstractions were built from particulars which were coded and grouped together into the themes which form the results of this study.
Also, a discussion group was formed to help negotiate the meanings within the study. This group was made up of two people with vision impairments, including a representative from Ngati Kaapoo (blind families), and a parent of child with a vision impairment. Their opinions and thoughts about the study formed part of the interpretation of the participants' experiences. This discussion group helped to prevent the creation of a 'top- down' project which is a study dominated by the researchers' concerns, methodologies, and interests, and to avoid the colonising approach of a 'bottom -up' project in which participants are evangelistically enlightened by the researchers (Bishop, 1994). The intent of the discussion group was to form a collaborative research approach in which people with direct experience of vision impairments interacted with and advised the principal researcher on the research procedures and interpretation.
THE THEMES:
FROM SOCIAL DEATH TO THE SOCIAL
William certainly felt that it was important to leave the special school. The other participants in this study, who had lived either at the Foundation for the Blind, or at the special school which was later established, all felt that it was a significant achievement to be 'chosen' to participate in the sighted community via a mainstream school. Otherwise, each of the participants felt that their lives would be controlled and determined by the Foundation. This was because they anticipated that they would be sent to work in the Foundation's workshops for blind people and perhaps even live in the Foundation's block of hostels, referred to by one participant as "the blind ghetto".
Anne: I um wanted to be the same as my family. Um I wanted to be like my brothers and sisters. And my parents wanted that for me too. ..... I thought I was better than everybody else cos I'd got out of Parnell. And I remember being very annoyed because at the end of Std 4 I'd had six weeks learning to be sighted. Learning to be like sighted kids at intermediate school and I came back to the break up in Parnell and no fuss was made of what I was doing. No mention or fuss. And I thought I was terribly important. The most important person in the world but nobody else thought that.
Tom: I think it was considered I had the academic skills to go (to a mainstream secondary school). But again ....there was a difference of opinion ..between the headmaster and one of the senior teachers. One of the senior teachers felt I should stay back another year...And of course the house staff didn't think I should go at all. You know they felt this was really breaking out of (the Foundation's) control: the cradle to the grave sort of stuff.
Sue: I remember...there was a class of kids who were probably teenagers who were still at Homai and they were in like the work experience class. And it was never made plain to us that we would just go onto an intermediate school and I think I always had it in the back of my mind 'oh will I make the grade' .....And I mean it was probably blatant obvious from when I was quite young that I would be able to, but no-one actually made that clear, which was a bit strange in a way because I was always worried a wee bit about that. It wasn't until our last year you know which meant we were in standard 4 that we were told yeah we would be going to intermediate and I think I felt quite relieved then because I hated to think that I would have to go into that work experience class.
Hine: I never got asked if I'd like to go intermediate. I was just told I was going. And I thought it to be a privilege. I thought well they must think I'm pretty alright.
The belief that leaving the segregated setting was a privilege and personal achievement can be linked to what Finkelstein has (1993) identified as the 'social death model' of disability. Here disabled people are considered not to be able to function independently in the community, and are placed in institutions where they are then unable to control their own daily lives. In contrast, once Anne, Tom, Sue, and Hine were in the mainstream, there was the opportunity to be social in a culturally valued setting, to establish themselves as persons similar to others of their age, and to participate in a 'social life'. They also now had the opportunity to equally participate in the community, and to find a 'social place'.
Two other participants in this study, Joe and Stuart, were integrated into mainstream schools at the beginning of their school career. Joe believed that he could fit in at a mainstream school, and neither he nor his family saw any reason to send him away to the residential school. Stuart's family felt the same:
Stuart: It seemed bloody strange that the youngest child should have to go away just because he couldn't see and while that might sound acceptable to some people to my family it wasn't. It was not understood because they didn't see a point. They didn't see a reason for that.
In these two cases the family, child, and perhaps teachers and others in their community, constructed blindness as part of a continuum of human experience at least to the extent of not assigning to blindness the outcome of social exclusion in school and other settings.
WELCOMING PRINCIPALS
The principal's attitude and leadership style is recognised as crucial to a school's philosophy and value orientation (Ballard & McDonald,1995; Bogdan & Biklen, 1985; Fulcher, 1989). From their research, Bogdan & Biklen (1985) say that when a principal believes that students with disabilities belong to the school, then the stage is set for successful mainstreaming to occur. Vandercook & York (1989) also note that it is important for the principal "to model an accepting and welcoming attitude toward all children in the school" so that each person in the school community can be valued for their uniqueness.
Stuart felt included at his first primary school and gives indirect credit to the principal for his inclusion:
Stuart: His attitudes were only available to me in so far as his teachers attitudes were available to me and his teachers attitudes to me were always very positive.
Hine also appreciated her friendly secondary school principal:
Hine: The high school principal. He was good. Yes (he would mix), if we happened to bang into him or anything along the way. We saw him at assemblies too of course. But no he was pretty good.
William, who went to his local intermediate school with other blind students, stated that his principal was also inclusive.
William: I think he probably paid a wee bit more attention to us, to the blind students than he might have to others. He always used to speak to me quite a bit. ... I thought he was quite inclusive. And wanted us to be involved in things.
Sue, who went to her local secondary school, describes her principal as
quite overpowering but she was really positive about me being there and she was really enthusiastic that the school would do everything they could to help me.
However, an accepting principal, alone, could not determine successful inclusive experiences for Sue and William. Both felt that they were not fully accepted at their schools because of relationships with teachers that were not inclusive.
Also, for Joe, although he felt supported by the school principal, he did not feel included because he did not attend his local school. During his primary school years he boarded in the 'big city' where there was a mainstream school with an attached visual resource centre. He travelled to the city from his family's farm two hours on the bus each week, and so experienced schooling as exclusion from his home setting. Nevertheless, the principal at the school did remind him of home:
Joe: Yeah I was actually good friends with the Principal... Mr T. and I thought that it was pretty good cos we had a 'T' plough at home so um.... Cos like I have a plough the same as him so. Yeah I used to have a yarn to him and that. Yeah he was quite nice. I'm not sure if he's still there but um yeah he's a nice guy
Joe did not feel included at school simply because he was away from his own farming community. He describes his life at this time as being of two worlds: school and home.
Joe: I remember.. going up there and the first day at school. I was in room one. I misbehaved. I did a bit ....sort of the first year and that. Cos I wasn't that old. I was only five and I used to get pretty homesick ..I used to fight all the time when I first started school. I suppose I was sort of rebelling or something...I think I found it was pretty hard to make friends and that, and I was a bit homesick.
In this case blindness was constructed in a way which brought physical, psychological and emotional isolation from the home, community, and, perhaps, identity with the distinctive qualities of farming life.
UNWELCOMING PRINCIPALS
The participants who lived at or near Homai College felt unwelcomed by those principals at mainstream schools who grouped them together either in class, or through exclusive language, so that they were identified not as students, but as 'Homai' students. Hine did not feel welcomed by her intermediate school principal as he was more absent than present. She "only saw him at assemblies". She states also that she did not feel included at this school because
Hine: we were all together. I thought that was unfortunate... I think we should have been split up. Now, it would have been scarier, but no I think we should have been split.
Sue and William felt excluded from their respective intermediate and secondary schools when they were identified as separate from other students and as belonging elsewhere.
Sue: I think the teachers ... were reasonably happy to have us there but they basically felt that the responsibility was mainly with Homai to make everything run smoothly. And they did see us as separate. Like I think the principal and vice-principal used to talk about the 'blind kids'
William: the principal kept referring to us as Homai pupils. And I found that really offensive. And the other teachers called us that too. I don't know whether it was some sort of prehistoric version of political correctness. Whether they didn't want to just call us blind pupils or whatever. ...It almost felt to me at the time like they were trying to disown us...
Tom did not feel the principal excluded him by his association with the special school, but stated that he was specifically aware of being separate from part of the school's identity which was rooted in the headmaster's enthusiasm for sports.
Tom: I think I felt at times left out of things ... Like especially the sport thing was a big thing. ...Grammar was very much a..., like you know the headmaster at Monday's assembly depended on how the 1st XV or the 1st XI had got on and if they had lost then (he was) grim, in fact they were (all) very very grim actually... He actually took the New Zealand cricket team over to England at some stage. So there was definite high expectations on sport at school.
For Stuart, although the mainstream schools he attended were not near Homai College, most of the time he found the principal was unwelcoming. He initially attributed this lack of acceptance to a lack of professional support for blind students. Describing his entrance into the education system, Stuart said:
Stuart: The difficulty of getting me into a school was horrendous....part of there being no professional intervention, professional support, at this time meant that schools had no idea how to deal with a blind child. There was ... one principal of one school in the area who suggested to my mother that he couldn't take me because I might jump across the fence at play time and run home....This was the kind of ignorance.
However, as his school life progressed, and as professional support became available, the justifications for his exclusion changed . Stuart's second primary school principal comes to life in Stuart's description:
Stuart: Corpulent in the extreme, he looked like a walking pear. ...He was close to retiring ..and he was this very ponderous public school old fellow who spent most of his time in his office and he may grace the stage at assemblies occasionally if he so wished to. ....He regarded the inception of blind children into his school as an impediment if it was going to affect the administration of his school and if it was going to affect the image of his school. So he was one of the principals that was very much tied up with image and.... he was one of the most obnoxious people I think I have ever ever met in my life ....His view of my being there and of other visually impaired students who later came to that school was that they were okay as long as they were within the framework of the school. He didn't want to make any exceptions.
Stuart's local secondary school principal was similar in that he wanted to avoid challenges.
Stuart: The Principal at the time ...was a "good news" principal. He liked good news.... You know he was one of these awful missionary types. I don't know where he got it from ....but...whatever problems I was having in the mainstreaming system and trying to get used to the school of his were as far as he was concerned problems that you know were related to the choice of school.
For these participants, their principals perceived blindness as outside of their definition of 'student'. Blindness was something their school did not have to 'own'.
INCLUSIVE TEACHERS
Classroom teachers with a welcoming and genuinely accepting position can create an inclusive learning environment for the day to day operations of a successful mainstream class with common sense adaptation of the curriculum and support (Biklen, 1989; Orlansky, 1979; Searle, Ferguson & Biklen, 1985). In the present study, Anne, believed that the success of any educational endeavour hinges on "whether the teachers have the skills to identify the students' abilities, help the students across the barriers that get in the way; and .. have a vision of where the kids are gonna end up'. The participants in this study felt included by a number of their teachers, especially when the teachers' commitment to education included taking the time to learn the communication medium of their students:
Hine: Some of them were pretty amazing. ... I had a science teacher that would actually come along and he'd draw diagrams for me and go through them with me. And he'd label them for me as well, because he obviously had a bit of knowledge about braille. And you know that was really neat..Yeah and that was a real help. He was a brilliant teacher. I reckon he should never have been there. He should have been a professor.
Sue: A couple of teachers at school actually learnt braille while I was there. One of the maths teachers and one of the typing teachers...which was really helpful."
Another common theme which occurred amongst the participants of this study is that they felt accepted by their teachers when their blindness was not considered an impediment to learning and achieving.
William: I remember thinking it was quite neat that I was in the A stream with all these other sighted kids...I don't really know what the teachers thought that a blind child could achieve. But certainly I don't think we were treated much differently in terms of the classwork we were expected to do or how we were supposed to hand it in and things.
Joe: I really haven't had any really bad teachers. Some teachers make you work more than others which doesn't do any harm.
Stuart: They were enthusiastic as well and they were totally committed to educating kids. They didn't regard themselves as baby sitters they regarded themselves as people who were educating children
Anne: Extremely positive (attitudes). I was lucky. My teachers at intermediate school were absolutely excellent. They were good motivators and good stretchers and no nonsense. Quite strict.
There was also praise from the participants when they encountered a teacher who was simply intuitively inclusive:
Sue: This maths teacher was just totally natural and just treated me as she would any other student. You know we just used to talk about general things as well ... it was just really nice. ... yeah it was just nice for someone to treat you normally.
Stuart: My first class teacher, she was a wonderful introduction to school really because, I don't know whether she knew it or not, because her way of teaching things to other kids was very very relevant to the way things were taught to me.
Anne was appreciative of a teacher who shared, and sparked, her interest in a particular subject:
Anne: I always used to chat to the pianists who provided our morning assembly piano music. I valued the music in the school, very strongly. I valued our music teacher.... She was a bit crazy. I think I was one of the few students in the school that really liked her. She introduced me to so much pleasurable music.
Joe also continued his theme of feeling accepted by adults who reminded him of home. He describes his 'best' teacher below:
Joe: When I was in J2, I suppose I had a teacher called Miss Martin. I think she had parents down (this way) and that, so that was pretty good. And she'd grown up on a farm.
When teachers approach these students with similar expectations to those held for others of their age, but with recognition and responsiveness to their particular communication and related needs, they construct blindness as part of ordinary human experience. Such a construction seems to be a key element of inclusive practices.
NON-INCLUSIVE TEACHERS
All regular teachers do not necessarily have an inclusive viewpoint. A 1984 New Zealand national survey of primary school teachers found that the attitudes of teachers towards children with disabilities varied according to the identified disability. Teachers did not feel able to teach children with sensory disabilities even when they said that they supported the principle of integration, unless additional resources, support and training were available (Norman, Sritheran, Ridding, 1984). Such feelings may be based on the actual experiences of regular teachers, and were similar to those presented in O'Brien's (1989) study, where teachers also said that they were unable to cope with the instructional needs of blind children. Participants in the present study noticed similar attitudes, and subsequent inadequate teaching practices, from some of their teachers who made them feel 'different' because of their particular needs.. Anne stated that her teachers at intermediate "continued to teach the 'chalk and talk' style. Chalk and talk...on the blackboard." Most of the other participants also spoke of similar difficulties about the use of the blackboard. Below are some examples of their comments:
Hine: We weren't prepared for the speed at which they learnt. Taking notes, we never had to do that at Homai. Copying things off the board. Our teacher tried to be good and tried to get us to hurry up. But intermediate was a whole new ball game.
Joe: But one thing though...quite often it's quite sort of new to them when they put something on to the blackboard and they've gotta sort of say it too....some are better than others. ... It takes a bit of getting used to.
Also, there were misunderstandings between teachers and the participants about Braille which led the participants to believe that the teachers did not have an adequate knowledge about their alternative method of reading of reading and writing, and were subsequently treating them unfairly:
Anne: For a while I only had one Perkins brailler so there was a bit of an argument about whether I needed one at school and one at home. They're actually quite heavy to carry especially when you're an eleven year old. ..My teacher used to argue that I ought to be able to take it backwards and forwards.... But it was bizarre because the typewriter was lighter than the Perkins and I had a typewriter at school and a typewriter at home, but not a Perkins at both ends. .... Yeah. I knew it was a pen and I knew it was hell of a lot bigger than a regular pen and I knew I needed it at both places and it was heavy to carry. So what's the argument...?
William: Well the resource room was kind of like a home base and you'd go back there and collect your books for the next period. ..So this particular time ... I thought that we had finished the maths subject that we were doing,...I thought it would be the next volume. .... I mean I knew that the teacher jumped around the place ... And when I got there, we were not using that volume. And so I explained what I had done, and the teacher said that I had to write, I think I had to write 100 lines saying "I must remember to bring the right textbook to class". And I tried to explain that I brought the right textbook, its just that braille was so bulky that I'd brought the wrong volume. She wouldn't accept it.
One of Stuart's teachers actually refused to teach a Physics class because Stuart was in the class:
Stuart: I faced my very first bit of institutionalised refusal to teach a blind student and it came in the form of a man called Mr. M. We had the science classes streamed and I was in the top one .....Mr. M. was supposed to teach the physics module and he couldn't teach that class because I was in it...I complained. I went to the Principal and I said "you cannot let this happen. It is not legal." .... The suggestion was made that I change classes and go into another class ...I said "No you have put me in this class because I've earned the right to be there. Now you do something about it. It is your problem. It's not my problem."...They changed the teacher. Mr. M. went to some other class altogether, lower down the circle and I was taught by this very very good science teacher anyway.
Tom attributed his lack of success in certain academic subjects to his own lack of motivation to work. However, he also stated at the same time that "some (teachers) felt having a blind student in the class was a bloody nuisance" and that he was "left" out. Similar feelings of abandonment were expressed by Hine about her secondary teachers:
Hine: We were just students to them and that was it. See with the teachers at Homai, I think we were a bit more than students. I think they....they really wanted to get us as far as they could. And they really took the time and they put their whole energy into it. Unlike the mainstream school, well, 'all you can do is teach 30 students. And those of you that get it, great, and those that don't, tough'.
Sue holds a memory of a class in which she felt left out, but she also felt unchallenged academically.
Sue: My Form 2 class I hated because they put me into a class who I saw as being.....quite thick really. And it really annoyed me because I you know I was sitting there and they'd be doing really basic stuff. And it was just really boring. And the teacher was really patronising ...I felt really angry that I'd been put into that classroom because the classes were slightly streamed ... I'm pretty sure it was a below average one. ... I mean I didn't bomb out in my Form 1 class. I performed fine. ....but for some reason they just put me into that one.....I told them I wasn't happy with it and nothing was done. So I just had to put up with it ...I think what it might have been was that they actually asked class teachers if they were happy to have a blind kid in their class and obviously some of them maybe had said "no". And I know there was one Form 2 teacher who in the past had always taken two blind kids but this one year she'd said she only wanted one . So they put one (girl) in there who was probably a bit brighter than me, but then they just put me in this other class.....I sort of thought well what's the use of really trying when no-one seems to think I'm capable.
On the other hand, Sue and Anne sometimes believed that their teachers may have treated them differently by working too hard and helping too much so that it was noticeable to them and their classmates.
Sue: I think I felt a little bit of pressure because I knew that all these people were doing quite a lot more to make sure that I achieved so I felt a bit of pressure when it came to exams and stuff to do well....I mean all kids are pressured to a certain extent, but (their teachers) never had gone to special efforts to draw diagrams and (to give) a bit of individual attention to explain stuff.
Anne: Now I got into real trouble one day cos I actually talked about noise in the classroom and the teacher told the class off and I still feel bad about that ...the kids were not noisy at all. ... In fact our class was pretty quiet and our teacher used to comment that, because I was so sound oriented, she wished that all the kids would listen as much as I did and and the kids had to focus on more on sound cues than they would have otherwise without me if I hadn't been there.
Anne's and Sue's teachers' attempts to provide natural classroom reading support for them when there was only print material available also seemed to be ill planned, especially given the fact that both Anne and Sue did know how to read:
Anne: The teacher organised somebody to sit next to me. A different person. ... They would rotate through the class so all the kids had to put up with reading to me at different times. Yeah. It certainly made me feel different
Sue: In most of my classes, I had to have whoever sat by me ...read the stuff off the board, you know to write up. And that was actually a bit of a pain,....I didn't like having to feel dependent on the other kids in my class.... I think there was a point where they decided that rather than putting all this stress on one kid like my friend at that time or whatever, they'd make it so it was sort of like a buddy system and everyone would have turns doing it. And that was actually even worse because it meant that kids who wouldn't otherwise want to do it were forced into doing it. Its really horrible when you're sitting by someone who you know doesn't want to be sitting by you. You feel like just saying "oh just don't worry about it, just go away and I'll get someone else to do it." Cos its horrible feeling indebted to someone who doesn't even want to be doing it.
Sue further explained that "ideally they should have had a list of what was going to be written up on the board already brailled or something. That way I would have been totally equal"
From these experiences exclusion is seen as created by the position that the blind student does not belong in the classroom and that attention to their needs is not part of the teacher's role. Here blindness is constructed as a negatively valued difference that can be legitimately discriminated against by, for example, refusing to teach the blind student.
CONCLUSION
The participants in this study had been mainstreamed since the 1950s to the present day. However, despite these mainstreaming practices, none was fully included at their mainstream school simply because of their blindness. The stories in this study did not reflect schools which consistently practiced inclusion. Ballard and McDonald's (1995) study found that a school, which successfully included children with disabilities, contained a community of staff and families who all held an inclusive "world view" that children with disabilities were 'the same as everybody else' (Ballard & McDonald, 1995, p. 20), which is similar to Bogdan & Taylor's fourth humanizing dimension.
The principals and teachers in this study held various views. Some principals were perceived as friendly, helpful, positive and welcoming towards their blind students. Principals also were seen as impediments to inclusion because they were absent, and abdicated their responsibility for all of their students. Some principals labelled, and categorized, their blind students through language and the inflexible perpetuation of a school image which was rooted in physical competition. Some also held the belief that children with disabilities would be of no value to the school. There were also non-inclusive teachers in the participants' stories about their school lives. These teachers were not able or willing to change their teaching methods to accommodate all of their students. They were perceived as unfair when they misunderstood the reading and writing mediums of their blind students. At other times, perhaps unwittingly, they stigmatized their blind students by being noticeably too helpful. They a appeared to be unwilling to plan for, teach, and academically challenge all of their students. However, there were inclusive teachers in this study who were described as being enthusiastically committed to their job and to all of their students; who challenged their students and did not regard blindness as a barrier to learning; and who naturally shared themselves and their interests with their students.
The blind adults in this study had difficulty finding a social place as children in mainstream school environments. The meaning that other people in their lives gave to their blindness seemed to define them as different and they were not 'humanized'. Blindness meant imposed limitations in their educational and social participation. At other times they were accepted and included by welcoming people who saw them as they saw every child. All of the participants in this study stated that, if they had a blind child, they would not send their child to the special school, but even then, as Anne stated: she "couldn't guarantee that (she) could give my kid what they needed." Being in the mainstream does not necessarily mean receiving an appropriate education, as this study has begun to illustrate, nor does it mean inclusion. Ruebain (1996) defines inclusion as a "all for one and a one for all philosophy" (p. 2) which necessitates the rebuilding of schools and communities. New Zealand has not attempted to reshape it's schools as inclusive for all students in their communities.. Although the amendments to the Education Act in 1989 gave disabled children in New Zealand the right to attend any state school, there are no clear guidelines for national inclusion policies. Each school is also self managing and the individual school's policy is dependent on the views of its Board of Trustees and staff, limited financial resources, and the advocacy abilities of parents who have children with a disability (Ballard and MacDonald, 1995: Codd, 1993; Mitchell, 1992). Inclusion for all of the blind children in this study would have required an educational community of inclusive teachers, principals and others who could make a place for blind children where they would feel valued and wanted; who would understand and accommodate their student's reading and writing medium; who would plan ahead; who would challenge the students academically; and who treated all their students as 'like everybody else'. Such a community may not yet be able to be 'policied' into practice. However, the importance of acknowledging and documenting blind people's exclusion experiences may help to bring cultural and philosophical changes to the community, and to the socially constructed and disabling meanings of blindness.
 
 
 
 
 

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*Grateful acknowledgement is extended to all the participants who contributed their stories and wisdom to this study; to Dr. Jude MacArthur for her support and advice; to the study's discussion group for their fresh outlook and helpful interpretations; and to the Royal New Zealand Foundation for the Blind for the Research and Development Grant which helped to make this study possible.
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